Help us to build
the future of
diabetes care |
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Please help the
Stephanie Marks Appeal
to raise
£2.5 million,
to build and equip a
dedicated Diabetes
Resource Centre
in the grounds of
St. Peter’s Hospital,
to serve the South East |
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In Memory of
Stephanie Marks |
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Diabetes, a condition that can affect all age groups, is
a complex metabolic disease that occurs because of an
imbalance between the body's insulin requirement and its
ability to produce this hormone. |
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Type 1 diabetes occurs
when the pancreas cells that produce insulin have been
destroyed; daily insulin injections are therefore
essential to regulate how the body deals with glucose
(sugar). |
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Type 2 diabetes on the other hand, can be
treated with diet, exercise, tablets or insulin therapy,
depending on response. |
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Whilst Type 1 diabetes results from
factors beyond our control, the following factors are
contributing to the increase in the Type 2 diabetes
population: ageing
population, unhealthy diet, obesity, and inactive
lifestyles. Effective management of both types of
diabetes can increase life expectancy, improve quality
of life and
reduce complications. |
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Stephanie
Jane Marks
was born at St. Peter's Hospital in 1984 and died in
June 2002. She was only 17. |
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Stephanie had been Type 1 insulin
dependent for six years and sadly died as a result of
complications. Friends and family describe her as
vibrant, loving, caring, and positive. Above all this,
she epitomised optimism; to Stephanie, diabetes was
merely a stumbling block that she would easily overcome
in pursuit of her dream of becoming a doctor. |
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The Stephanie Marks Appeal was
launched in June 2003 by Ashford & St. Peter's Hospitals
NHS Trust with the aim of raising the awareness of
diabetes. The Appeal also looks to provide funding to
create a specialist Centre, together with a series of
'satellite' clinics with the assistance of GPs who have
a specialist interest in diabetes. The purpose is to
provide first-class accessibility to diabetes care in a
ground breaking 'hub and spoke' model of care. |
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"The Appeal
seeks to provide a lasting memorial to our beloved
Stephanie in her chosen profession. For us, her family,
this in itself is a magnificent goal but it is so much
more – like Steph herself, the Appeal seeks to make a
difference to people's lives by establishing a new model
of care for those who suffer from diabetes.
Since the Appeal started, we have been overwhelmed by
the support of our community and the many companies and
individuals who have raised so much money and awareness
and we would like to offer our sincerest thanks to you
all. As we enter the third year since her tragic,
unexpected and untimely death, please help us all to
build a part of Steph's dream and make it a reality –
diabetes care of the future, today."
Sue and Chris Marks, Parents |
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“Stephanie Marks
was only 17 when she died. My daughter is also in her
teens and shares her life with diabetes. This Appeal not
only aims to raise funds to develop a unique Centre, but
also to raise awareness
of a condition that is often misunderstood, and that can
lead to long-term medical problems if left undetected
and not carefully managed. Please do
offer your support… diabetes could hit you for six!”
Ian Botham OBE, Patron |
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How You Can Help |
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There are
many ways in which you can help the Appeal |
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Spread the word - tell ‘everyone’
you know about the appeal – others may also be able
to help!
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Donate by post / in person -
every pound received is greatly appreciated. UK
taxpayers can also allow the Appeal to claim a
further 28% on top of your donation under the
Government's Gift Aid Scheme (simply
click here to print off a gift aid form to send
with your donation)
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Donate online - donate securely
online at JustGiving.com using
this link
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'Give As You Earn' (GAYE) scheme
- support the appeal through your company payroll or
by setting up a monthly standing order direct to the
Appeal
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£1 for life key-ring (£1.50) – to
be used in super market trolleys and gym lockers
nationally. Never again find yourself within a £1
coin!
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Donate a prize for one of our
raffles / auctions
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Events - take part in one our
forthcoming events. Visit our
events page or contact the Fundraising Team to
find out what’s coming up!
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Organise an event – whether it’s
a sponsored walk, swim, or coffee morning, they all
help support the Appeal. Visit our events page on
our website for more ideas. Collect sponsorship
online saving you time in collecting your
sponsorship money!
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Re-cycle printer cartridges and
mobile phones – drop off points are: The Fundraising
Office at St Peter’s or Voluntary Services at
Ashford
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Christmas Cards – all card
designs are featured on our website within our
Shop section
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Donations |
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If you would like to make a donation,
please send you cheque made payable to ”The Stephanie
Marks Appeal” and send to the address below.
DON’T FORGET to print off a
gift aid form or complete the gift aid form within
our appeal leaflet.
The Stephanie Marks Appeal
Fundraising & Communications
Ashford & St Peter’s NHS Trust,
Guildford Road, Chertsey, Surrey KT16 0PZ |
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Fundraising
Events |
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Living With Diabetes Day |
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Stephanie Marks Diabetes Centre Appeal |
- Saturday 19th April 2008 10am-4pm
- Where:
Sir William Perkins’s School, Chertsey, Surrey
- Book Now - places are limited to 300 and
booking in advance is advisable.
- Cost: Adults £6, Senior Citizens £4,
Hot and cold lunch £4 (packed lunch can be brought in if
preferred)
- Tickets :
The Stephanie Marks Appeal
01932 722 330
Please mention all about Weybridge website when booking
- E-mail:
val.marks@asph.nhs.uk
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One of the objectives of the
Appeal is to promote awareness of diabetes. Now
in its third year, our annual Living with
Diabetes Day has become tremendously popular. |
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We are privileged to have
heard from such eminent speakers as Becky Botham,
Ian’s daughter who has lived with diabetes since
the age of 20; Richard Lane OBE who was the
first person with Type 1 diabetes in the UK to
be insulin independent since receiving three
Islet Cell Transplants and Professor Simon
Howell, Chair, Board of Trustees, Diabetes UK. |
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Aimed at people with diabetes, carers and their
families, it is described as a day of
information and inspiration. |
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Raising £2.5 million to build and equip
a dedicated diabetes resource centre
Ashford & St Peter's Hospitals |
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Stephanie Marks Diabetes Centre Appeal
- More Info |
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Paraglide or skydive for charity
If you are interested in skydiving or paragliding for charity, please
contact the Appeal's team now. |
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Raising £2.5 million |
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The Stephanie Marks Diabetes Centre - The Final Push! |
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The Board of Ashford and St. Peter's
Hospitals NHS Trust and the Trustees of the Stephanie
Marks Diabetes Appeal unveiled the design for the new
diabetes Resource Centre at a buffet lunch generously
hosted by The Ship Hotel, Weybridge on Monday, 22nd
October 2007. |
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The planned two storey,
state-of-the-art Resource Centre will be located at the
entrance to St. Peter's Hospital and will serve the
Ashford & St. Peter's Hospitals NHS Trust catchment
area. £150,000 is needed to bring the Appeal to a
successful conclusion and achieve the goal of improving
the quality of diabetes care for patients living in
Surrey and West Middlesex! |
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A Great
Start |
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Following our initial launch in June
2003, the Stephanie Marks Appeal has already helped
raise the awareness of diabetes throughout the
community, attracted local corporate support, and been
successfully selected by the Mayor of Elmbridge as his
charity for the year.
Our thanks to those who have supported our fundraising
events, such as the Hollywood Night, Sir Steve Redgrave,
Flag Relay, the Drifters Charity Concert and many more.
The growing need for a specialist diabetes Centre and
the commitment by staff, patients and the community
re-assures the Trust that the project is clearly on
track. Momentum is continuing to build and over £120,000
(September '04) has already been donated from public
support alone, with an anticipated £500,000 over the
next two years. The remaining £2 million will need to be
generated from corporate support, to enable the
two-year build programme to commence. |
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Developing Partnerships |
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Establishing corporate
partnerships, both within the business community and
the pharmaceutical industry, is key to the success
of the project. It is also essential at this early stage
for us to identify how the pharmaceutical industry could
benefit, giving them the opportunity to input into the
structure of both the research and educational
facilities to be available within the Centre. |
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We invite your participation which
could take many forms. In return for your support,
whether it be through sponsorship of the Centre,
development of specific rooms, supporting the network of
community clinics, input into the research facility
(which could be used for pharmaceutical trials) or
providing educational support or equipment, we
guarantee strong visible recognition throughout the
project and within the facilities created. |
Why
Support Such A Project?
- It will be the first hospital/GP-based
'hub & spoke' diabetes service in the South East
- St. Peter's Hospital has allocated land to build
a 1070 sq metre Resource Centre at the entrance to
the St. Peter's site, on the current location of The
Croft in front of Abbey Wing
- Location at the front entrance of the hospital
grounds gives excellent opportunities for targeted
publicity
- The project is high profile across a
range of diverse communities
- The initiative will create an excellent
clinical research dataset covering a population
of over 450,000
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Working
with Charitable Trusts |
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The Stephanie Marks Appeal has strong
community-based targets and sets an exciting
precedent for the management of chronic disease. We
are keen to work with Charitable Trusts whose aims and
interests have strong ties to supporting community-based
health and social care projects. Thus, this project
offers a real opportunity to support a facility that
will supervise the control of a disease anticipated to
be a growing cause for concern. |
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Growing
demands on Diabetes Care |
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The number of patients faced with diabetes is growing
rapidly, with figures in the UK looking to double,
potentially treble, by 2010. At this rate, there will be
20,000 people with diabetes within the catchment area of
Ashford & St. Peter's NHS Trust. |
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The
Stephanie Marks Appeal needs to raise £2.5 million, to
build a dedicated Diabetes Resource Centre in the
grounds of St Peter's Hospital and to provide
care to match this growing demand. The model of care
will provide a seamless structure linking Ashford & St
Peter's Hospitals (the acute Trust) with GP practices –
communication, education and, above all, partnerships
are key elements to the success of this project. |
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As the number of people with diabetes
grows, there will be an increasing need for efficient
communication between hospital clinicians, specialists,
GPs and patients. In parallel with the guidelines in the
National Service Framework (NSF) for diabetes, the
proposed Resource Centre, based at St. Peter's Hospital
(Chertsey, Surrey), will serve as a focal point for
patients, carers, staff and researchers. Not only will
the Centre treat people with diabetes, but it will also
house educational and research facilities, space for all
diabetes staff, and create a drop-in meeting/social
venue. In addition there will be a network of clinics
providing GPs who have a special interest in diabetes
with a focus for their healthcare delivery. The location
of these clinics will evolve over the next six months
following discussions with each of three Primary Care
Trusts: North Surrey, Surrey Heath & Woking, and
Hounslow (a substantial clinic being based in the
Ashford, Middlesex area). |
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The Stephanie Marks' Project Team has
a clear vision of the communication systems that are
needed and the IT systems to support them. The new
national IT and records systems are being developed in
parallel with the project and will match the needs of
users. The timing could not be better and opens up
exciting possibilities. |
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Clive Thompson CBE
Chairman of The Stephanie Marks Appeal and
Chairman, Ashford & St Peter's Hospitals NHS Trust |
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Management of Diabetes |
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Diabetes care is complicated,
involving a wide range of services. The Stephanie Marks
Centre seeks to update the way diabetes is currently
handled by providing a co-ordinated network and a
central resource for the entire catchment population of
450,000 people. |
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The model of care we are looking to
provide has been developed following national guidelines
(www.dh.gov.uk/nsf/diabetes)
and is based on the strategies for chronic disease
management of three Primary Care Trusts: North Surrey,
Surrey Heath & Woking, and Hounslow. |
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The philosophy behind the Stephanie
Marks Centre is to provide an identifiable and
accessible resource facility for all involved in
diabetes care. One of the major benefits of a modern
diabetes network is faster communication in all areas of
diabetic healthcare delivery: |
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Shared electronic records:
Healthcare professionals will be able to view test
results and scans from their practice computer
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Auditing: Medical staff will
be able to track patient progress and record
treatment outcomes
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Patient identification:
Patients who are at risk of complications will
receive specific monitoring
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Patient advice: Healthcare
professionals will be able to email results,
information and advice directly to patients
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Practice support: Practices
in the network that are struggling to meet targets
in any area of diabetes care will be given extra
support
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This sort of collaboration has
enjoyed success in areas such as Tayside, Scotland,
which is now one of the most advanced regions in the UK
for monitoring and measuring improvements in diabetes
care. The creation of such a network would clearly
provide a balance between community and specialist care
(details of the Tayside project can be viewed at
www.diabetes-healthnet.ac.uk). |
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The need
for training |
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The diabetes team based within the
proposed Resource Centre will work together with the
Primary Care Trusts to provide diabetes care in the most
appropriate setting, ensuring that people with diabetes
are managed on the basis of their clinical needs and
requirements. Equally important will be the continued
development of a range of diabetes nurses and staff for
maintaining a register, ensuring regular surveillance,
and providing much of the educational and routine
assessment – both in hospital and community settings.
The Centre will provide many of the educational and
communication functions that will be equally accessible
by patients, carers and health professionals. |
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A focal point by 2007/08 – The
Stephanie Marks Resource Centre
St. Peter's Hospital, Chertsey |
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£2.5 million needs to be generated by 2005 to
enable the two-year build programme to commence. This will
ensure the Diabetes Resource Centre will be fully operational by
2007/08 to meet the growing demand for diabetes care in the
South East. |
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The Resource Centre will be based on the St.
Peter's Hospital site, Chertsey, which covers the 450,000
catchment area served by Ashford & St. Peter's Hospitals NHS
Trust. The Centre will serve as a focal point for patients,
carers, researchers and healthcare professionals. |
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Treatment
A cutting-edge clinical service will allow access to advice and
treatment, such as: |
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Routine annual screening
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Consultant referral
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Retinal screening
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Diabetes management
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Specialist nursing
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Podiatry
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Dietetic services
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Education
Provision of services for both patients and healthcare
professionals: |
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Healthcare professionals can learn how to
streamline diabetes care in their practices through
appropriate techniques
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New patients can learn injection and blood
sugar monitoring techniques under the tutelage of a trained
nurse. This means that the patient does not have to wait for
a specialist appointment
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The Stephanie Marks Centre will provide a
resource for both the development of group sessions for
ongoing education (DAFNE, DESMOND*) and diabetes management
(e.g. group initiation of insulin therapy).
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Research
In order to help develop new treatments for diabetes, The
Stephanie Marks Centre will be designed to accommodate
healthcare professionals and pharmaceutical companies providing: |
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A nurse infrastructure for
performance of research
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Up-to-date database systems to record
information
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Access to the relevant patient
communities
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Facilities for studies
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* DAFNE: Dose
Adjustment for Normal Eating
DESMOND: Diabetes Education & Self Management for Ongoing &
Newly DiagnosedI |
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Diabetes In
Children & Adolescents |
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Diabetes is one of the most common
chronic diseases of childhood. It can strike children at
any age, including pre-school children and even
toddlers. Yet diabetes in children is often diagnosed
late, or it is misdiagnosed completely. |
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Today, more than 240 million people
worldwide are living with diabetes. Within 20 years,
this number is expected to grow to 380 million. Children
are not spared from this global epidemic, with its
debilitating and life-threatening complications. Type 1
diabetes is growing by 3% per year in children and
adolescents, and at an alarming 5% per year among
pre-school children. It is estimated that 70,000
children under 15 develop type 1 diabetes each year
(almost 200 children a day). Type 2 diabetes was once
seen as a disease of adults. Today, this type of
diabetes is growing at alarming rates in children and
adolescents. |
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Diabetes is different for children |
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Diabetes has a unique impact on
children and their families. The daily life of children
is disrupted by the need to monitor blood glucose
levels, take medication, and balance the effect of
activity and food. Diabetes can interfere with the
normal developmental tasks of childhood and adolescence,
which include succeeding in school and transitioning to
adulthood. The Stephanie Marks Diabetes Appeal is
raising money to create a state-of-the-art diabetes
resource centre. This cutting edge facility, which will
be located at the entrance to St. Peter's Hospital, will
help the child and family cope and ensure the best
possible physical and emotional health of the child.
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In line with the goals of the
Stephanie Marks Diabetes Appeal, the International
Diabetes Federation campaign aims to raise awareness of
the rising prevalence of both type 1 and type 2 diabetes
in children and adolescents. Early diagnosis and early
education are crucial to reducing complications and
saving lives. The healthcare community, educators,
parents and guardians must join forces to help children
living with diabetes, prevent the condition in those at
risk, and avoid unnecessary death and disability. |
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Contact Details |
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| Address |
Claire Daniels / Val Marks, Fundraising
Manager
The Stephanie Marks Appeal The Studio
Ashford & St Peter’s NHS Trust,
Guildford Road, Chertsey, Surrey KT16 0PZ |
| Contacts |
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Telephone |
| Claire Daniels |
Fundraising Manager |
01932 722330 |
| Val Marks |
Fundraising Manager |
01932 722330 |
| Andy Hollebon |
Communications Manager |
01932 723740 |
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Email |
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Claire.daniels@asph.nhs.uk or
Val.marks@asph.nhs.uk |
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Website |
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www.stephaniemarks.org.uk |
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Ashford & St. Peter's Hospitals
Charitable Fund, Registered Charity: 1058567. |
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Email a Friend |
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